February 20, 2009

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Medical News -- Convection Enhanced Delivery
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New Article:

http://www.ncbi.nlm.nih.gov/pubmed/19212774?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_
ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum : Interstitial continuous infusion therapy in a malignant glioma model in rats.

Background Information:

http://www.ncbi.nlm.nih.gov/pubmed/18952590?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_Result
sPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum : Convection-enhanced delivery for the treatment of pediatric neurologic disorders.

http://www.ncbi.nlm.nih.gov/pubmed/17639894?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_
ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum : Real-time image-guided direct convective perfusion of intrinsic brainstem lesions.

http://www.ncbi.nlm.nih.gov/pubmed/18076322?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ Results Panel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=5&log$=relatedreviews&logdbfrom=pubmed : Convection-enhanced delivery for treatment of brain tumors.

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Medical News
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http://www.ncbi.nlm.nih.gov/pubmed/18784279?ordinalpos=4&itool=EntrezSystem2.PEntrez.Pubmed
.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum : Experience with irinotecan for the treatment of malignant glioma.

http://www.plosgenetics.org/article/info:doi/10.1371/journal.pgen.1000374 : A Drosophila Model for EGFR-Ras and PI3K-Dependent Human Glioma

http://www.newswise.com:80/articles/view/549216/ : Two Gene Mutations Linked to Most Common Brain Cancers - and Longer Survival

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Foundations News
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http://www.caringbridge.org/visit/gunnergillespie : Gunner's Magic Train is trying to "BOUNCE OUT PEDIATRIC BRAIN TUMORS" We are hosting the fundraiser to raise funds and awareness for brain tumors in hopes of helping to find a cure. WE CHALLENGE your school or organization to try and raise the most money.

http://www.dipg.blogspot.com : DIPG Discussion -- brought to you by Just One More Day for Love, Hope & a Cure. A place to discuss and stay up to date on the diagnosis and treatment of Diffuse Intrinsic Pontine Gliomas and the DIPG community.

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February 5, 2009

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Foundations News
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http://www.riahsrainbow.org/ : Introducing Riah's Rainbow
Helping children enjoy art as much as Mariah did

The ultimate goal of Riah's Rainbow is to bring smiles to the faces of children who have to endure a day, a week or even months in the hospital.  Our mission is to be able to give local hospitals new coloring books,crayons, markers, craft items, puzzles, etc. to pediatric patients.

http://www.smilesforsophieforever.org/grants-for-families.asp : Smiles for Sophie Forever  Family assistance

Knowing of the heart-wrenching emotional strain, compounded by the financial burden of caring for and treating the child, the Grant Committee made the application process as simple as possible. There are only three documents required in order to be considered for a $500 renewable grant; applying families are eligible for three grants in a calendar year. The requirements are: the completed SFSF grant application, a letter from the attending physician, and a copy of the patient’s birth certificate.

http://www.kraftwerks-remodeling.com/ : There's a Monkey in my chair

There's a Monkey In My Chair is a program developed by the Love, Chloe Foundation.
It is designed for pre-school and elementary aged children who are diagnosed with cancer. Each child is provided with a "monkey kit" which includes a big stuffed monkey that takes their place in school when they are unable to be there. The kits include the monkey with a backpack, a book, and other items that can be utilized by the child and/or their classmates.

http://www.lovechloefoundation.org/ : Love, Chloe Foundation

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Advocacy Call
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http://www.justonemoreday.org/Advocacy/NCBTPreventionNetworkActof2009.html : National Childhood Brain Tumor Prevention Network Act of 2009 S. 305

http://www.justonemoreday.org/Advocacy/NCBTPreventionNetworkActof2009/LetterToCongressionalRepresentativeand
Senator.html : Sample Letter to Congressional Representative and  Senator

http://www.justonemoreday.org/Advocacy/NCBTPreventionNetworkActof2009/LetterToStateRepresentativeAndSenator.html Sample Letter to State Representative and Senator